Pinel said she wanted more education for women who may not know they had it and to support those who did.
“We can’t just put the onus on the women themselves to seek out that sort of education – there is so much misinformation online, on TikTok, Instagram, even Facebook.
“If that’s where you’re seeking out knowledge… we’ve got to be really, really careful,” she said.
In 2024, the BBC found influencers were selling fake cures for PCOS.
Pinel advised people who thought they had the condition to seek professional support.
She said: “In terms of diagnosis, you are always entitled to a second opinion.
“I wasn’t diagnosed the first few times. I had those exploratory tests, so I sought out a secondary opinion because I know my body.
“If you feel like you’re not being seen or heard, then please go and seek that second opinion because you deserve it.”
The government said a women’s health strategy was a requirement of the Government Plan and was due to be published later this year.
